Genomics for Kids in ASEAN programme to set up registry to further tackle rare diseases in region

Since its launch in 2022, the programme has reduced the time to diagnosis from a global average of 7.6 years to just weeks.

Canadian pediatricians call for cholesterol checks for kids as young as 2 to catch heart risks early

The Canadian Paediatric Society is recommending cholesterol screening for all children between two and 10 years old, saying ...

Have we leapt into commercial genetic testing without understanding it?

Daphne O. Martschenko and Sam Trejo both want to make the world a better, fairer, more equitable place. But they disagree on whether studying social genomics—elucidating any potential genetic ...
QNS

Kids of Queens: Making streetwear that empowers kids and gives back

Lindsay Colbus: The easiest way to support Kids of Queens Kids of Queens: Streetwear that Empowers Kids and Gives Back – Kids of Queens LLC is to join in!
STATOpinion

I’m a rare disease mom, and I finally have new hope for my son’s future

For too long, the promise of personalized therapies has been tantalizingly close, yet frustratingly out of reach for ...

Two Kids Discover Rare Albino Squirrel in Churchyard and Can't Contain Their Excitement

Yet two young children saw a rare albino squirrel in a churchyard, according to a BBC story. The two children were counting ...

Eddie Vedder turns solo vulnerability into a powerful plea in Netflix’s 'Matter of Time'

Eddie Vedder uses two emotional solo concerts and a new Netflix film to push for a cure for epidermolysis bullosa. In October ...

Gene therapy is transforming lives, but for many Americans it's hard to reach

Gene therapies have the potential to cure some diseases, but they are extraordinarily expensive. Location can also be a big ...
Labiotech.eu

Rare Disease Day: is a regulatory overhaul what the therapeutic field needs?

Rare Disease Day is held on the last day of February to raise awareness for rare diseases and address drug development ...

Workforce program at Space Center Houston expands space talent pipeline

Space Center Houston's Accelerate Space program helps professionals transition into aerospace jobs through training and networking.
Opinion
The PostOpinion

For the Record: Epstein was a eugenicist of America’s making

Jeffrey Epstein discussed numerous ideas of genetic superiority in the files, including creating his own “designer babies.” Epstein’s journey marks a darker history and requires action to truly ...